The Official Patient's Sourcebook on Multiple Endocrine Neoplasia Type 1: A Revised and Updated Directory for the Internet Age by Icon Health Publications

The Official Patient's Sourcebook on Multiple Endocrine Neoplasia Type 1: A Revised and Updated Directory for the Internet Age



Download The Official Patient's Sourcebook on Multiple Endocrine Neoplasia Type 1: A Revised and Updated Directory for the Internet Age




The Official Patient's Sourcebook on Multiple Endocrine Neoplasia Type 1: A Revised and Updated Directory for the Internet Age Icon Health Publications
Language: English
Page: 196
Format: pdf
ISBN: 0597834148, 9780585430836
Publisher:

From the Publisher

This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching multiple endocrine neoplasia type 1 (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to multiple endocrine neoplasia type 1. It also gives you sources of information that can help you find a doctor in your local area specializing in treating multiple endocrine neoplasia type 1. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with multiple endocrine neoplasia type 1. Part II moves on to advanced research dedicated to multiple endocrine neoplasia type 1. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on multiple endocrine neoplasia type 1. When possible, contact names, links via the Internet, and summaries are provided. In general, every attempt is made to recommend "free-to-use" options. Part III provides appendices of useful background reading for all patients with multiple endocrine neoplasia type 1 or related disorders. The appendices are dedicated to more pragmatic issues faced by many patients with multiple endocrine neoplasia type 1. Accessing materials via medical libraries may be the only option for some readers, so a guide is provided for finding local medical libraries which are open to the public. Part III, therefore, focuses on advice that goes beyond the biological and scientific issues facing patients with multiple endocrine neoplasia type 1.

Excerpt. © Reprinted by permission. All rights reserved.

Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers multiple endocrine neoplasia type 1, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that multiple endocrine neoplasia type 1 is often considered a synonym or a condition closely related to the following: hyperparathyroidism; MEN1; Sipple's syndrome; Wermer's syndrome.

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